The most frustrating time is…

when you have all of the problems but none of the solutions

  • When you are pretending nothing is wrong, but it is.
  • When you can’t walk properly but you haven’t got a stick, or crutches, or any way into or out of your flat
  • When you can’t walk but you can’t face thinking about using a wheelchair & all the changes that would bring
  • When you have enough bowel or bladder problems to stop you going out, but not enough to make you ask a continence advisor or chemist’s shop for help
  • When you want to be normal but you can’t be
  • When you see yourself as normal but your body isn’t functioning normally
  • When you’re talking slowly but people  haven’t learnt to give you time to join in the conversation
  • When your hands don’t work but you haven’t learnt to manage without them
  • When nobody is making allowances for your symptoms – because you haven’t told them/ they can’t see them – and you really don’t want to tell them

About thetroublewithillness

I've been a counsellor for people with physical illnesses for a long time now, and learnt a lot about what it's like living with your own or someone else's illness. I want to pass some of this on.
This entry was posted in carers, counselling, emotions related to illness, grieving processes, health, identification, illness, talking about feelings. Bookmark the permalink.

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